Posts Tagged ‘myasthenic’

Myasthenia Problems During Pregnancy and Birth

An improvement of the Myasthenia Gravis is just as possible during the pregnancy as a degradation. Mestinon or Kalymin cannot be taken without hesitation, them represent for the unborn a risk. Cortisone is regarded as relatively safe medicine during the pregnancy and is probably the means of first choice, if a Immunosuppression is necessary during the pregnancy. Immunglobuline, immune adsorption and Plasmapheresis are likewise without special risk for the pregnancy. The risk of premature baby birth should be increased with Myasthenia mothers.

The myasthenia pregnant woman should use to gather strength for the birth and not least for a very stressful time after birth. A stable Myasthenia is during the pregnancy meaningfully and importantly also for the child.

Because the muscles of the uterus are not affected by the MG Myasthenia Gravis, a normal birth is possible in principle. Only in the second stage of other muscles is required to cooperate, they are too weak, the use of ventouse or forceps be useful. With the exhaustion of a Caesar child birth may be necessary, but this is rather the exception. That are absolutely necessary precautions anaesthesia or local anaesthesia should definitely be discussed long before the birth with the doctors.

Since during the birth, the digestive processes are interrupted, and the active ingredients from tablets at that time only partly absorbed by the body. Mestinon should be injected intravenously if needed.

From 15 to 30 percent of the infant born children of myasthenic mg myasthenia mothers has a so-called neonatale myasthenia gravis (neonatal MG), which heals completely however within fewer weeks of after the birth. The symptoms arise within a few days after the birth and show up particularly in weakness when drinking and crying. Which children are concerned, cannot be predicted unfortunately and is not from the condition and the anti-body titer of the mother to be derived. Each newborn child of a mg mother should be supervised therefore some days after the birth medically. Also the freshly baked mother should observe herself carefully, because the hormone conversion after the birth can cause a degradation of the Myasthenia with approximately 30% of the women. For these reasons it is very advisable to go for relieving into a hospital with attached newborn child monitoring station and myasthenie experienced neurology.

It is to be considered, medicines into the mother’s milk ignores. With Mestinon one goes out in the meantime with it, mixing to 300 mg with a satisfying mother is harmless. But not only medicines, but also the antibodies of the mother are to be found in the milk. Whether satisfying is justifiable is very controversially discussed, from there and should be decided in individual cases in each case.

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Myasthenic Woman Should Be Aware Before Pregnant

The Myasthenia no obstacle for a pregnancy. The MG (Myasthenia Gravis) one does not further-leave, and the muscles of the uterus are not affected by the myasthenia. Nevertheless some things are to be considered approximately around the pregnancy. Pregnancies with Myasthenia Gravis woman must be regarded in principle as risk pregnancies, a good co-operation between the woman, the treating neurologist and the gynecologist are very important!

Which should be considered before the pregnancy, depends naturally completely considerably on how heavy the Myasthenia is and is taken which medicines. Who comes only with Mestinon marvelously by right or without medicines, needs itself before not too many thoughts to make.

Differently it looks, if immunosuppressive  are necessary or meaningful. In principle it is not naturally better, in these times children too gotten, because these medicines can cause – at least theoretically – damage with the child. Before now the immunosuppressive is set off for a pregnancy, is it possibly meaningfully to clarify (medically to be able to treat in the self attempt), how it with the fertility with woman and man looks, in order possible problems before. If the woman and man physician give then green light, the immunosuppressive can be set off or replaced by cortisone.

But unfortunately pregnancies do not leave themselves always so perfectly plan.  If it should come during the treatment with immunosuppressive to an unplanned pregnancy, immediately the physician must be informed! Whether now the pregnancy be broken off it should or whether the immunosuppressive is set off, whether they are replaced by cortisone, whether one leaves everything with the past dosage or uses Immune globuline and or Plasma sphere becomes, depend surely on many factors. Nevertheless newer studies showed, which does not have Imurek with humans as can be prove damaging effect on the unborn. With women, who become more pregnant after a organ transplantation, even a continuation of the Imurek therapy is to be recommended (however surviving depends completely considerably on the Immunosuppression) with these women.

It is in any case advisable to look in such cases in the Internet for new research results! Antje arranged very good information about pregnancy and immunosuppressive drugs, and tips for further information search.

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Holiday Tips for Myasthenic

In principle, it is not a problem, despite myasthenia-gravis go on vacation. Basically you should be aware of the special features of myasthenia own a little to early detection of a possible risk to. What is daring even for healthy people, can be used for myasthenic an incalculable risk.

*  With air passage luggage items can be lost! Therefore always at least, in the case of doubt all medicines rather carry a multi-daily supply forward of medicines in the hand baggage in´s hand baggage!
*  Carry sufficiently medicines forward. Nothing is more annoying to have to look for as itself in the vacation only a physician and a pharmacy. Besides one must count abroad on the fact that the used medicines are to be gotten heavy or not at all. Enough Mestinon for easy degradations take into account!
* A foreign health insurance should be always locked with journeys abroad. And one inquires, before one signs the contract whether the insurance takes over also the costs of the treatment from diseases already existing – that is not natural unfortunately!
* In many countries the medical supply is clearly worse, than we are accustomed it in Central Europe. One should plan journeys to such countries doubly thoroughly and carefully and completely absolutely carry an extra plentiful supply forward of medicines.
*  There is a very good web page, on which one can inform about health risks and inoculation for the desired destination – the URL is deposited with on
*  Travel conditioned health risks must be taken into account particularly carefully. Some travel sicknesses can be avoided by prudent behavior. This is valid already for healthy one, Myasthenics must this doubly and three-way consider.
*  Journeys into countries or regions with special infection risk is to be advised against.
*   The more with difficulty the Myasthenia, the more prudently should be travel planning.
*  Discuss in the case of doubt the travel plans with the treating neurologist and before beginning of the journey inquiries draw in whether at the resort mg-experienced physicians are to be found.
*  Myasthenia medicines should not be kept over 25º C, be transported from there with author iron the medicines in the case of doubt in a cold box.

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Against Mental Low from Myasthenia

Most Myasthenic knows: If the Myasthenia MG is bad, one is also emotional and can get bad-mood. A vicious circle, since the emotional load can worsen for its part again the Myasthenia disease. Thus, it is doubly important in bad times, do something that’s good, a little too pampered and comforted.

As addition of the hints for technical handling the Myasthenia Gravis (MG) this is round a loose collection of hints of different Myasthenic around the topic “Help for the Soul”. Inevitably these hints are still more personal and more individual than any other. Ideas are certainly among them, the one wonderful help, the others are but a great horror. How to search out something to suit everyone – and let yourself be inspired to own ideas!

Most importantly it is natural to treat and or treat let the Myasthenia meaningfully. But unfortunately, the drugs sometimes take a while to be effective for those times here, the ideas for the “soul rescue”. I hope all myasthenics every where can struggle from low mental so they can enjoy daily live with myasthenia.

Daily Life with Myasthenia Gravis Tips Part 1

The necessary changes by the Myasthenia Gravis of everyday life are very individual and depend not only on the severity of the myasthenia disease, but also depends on how much the Myasthenia symptoms of impeding the course of normal everyday life. Therefore, everyone should pick out from these instructions only what makes our own situation. If you have more tips daily life with myasthenia gravis, please send to me and I will publish immediately.

* If the forces sufficient only for a limited time, you should schedule breaks throughout the day.
* The more limited the powers, the more thoroughly must learn to classify them.
* An afternoon nap, a nap can bring new energy reserves for the afternoon and evening.
* Work for which not enough our own forces, if possible give to others. This is not possible, you should consider whether the work can be other ways easier to handle. Here, imagination is required! Often, small changes lead to handle even a big relief.
* Whenever it is reasonable and practicable, you should use technical and / or electrical aids.
* For kitchen appliances and respect for other media buying on a simple and myasthenia-friendly operation and low weight.
* Who has difficulties with the arms, should not in cabinets or the like often necessary articles over addendum keep. This is completely particularly valid for heavy articles! A Tretleiter can help to increase the range.
* Anyone who has difficulty in standing, should be used whenever necessary, a standing aid. Many tasks can be done even when sitting.
* On smooth floors, can prevent falls ABS socks or slippers.
* A car with power steering and automatic transmission can save valuable power.
* To be prepared in case of emergency, it is useful to always carry an emergency passport with him. For just in case of accidents it is necessary that doctors be informed about the myasthenia.
* If the breathing difficulty at night and can, especially at night time interruptions in breathing apnea, a Bi-PAP auxiliary breathing apparatus to bring relief to make restful sleep, and thus ensuring greater energy reserves during the day.
* If lack the strength to cough again, you can support the abdominal muscles, either himself, if the power is there, or ask someone for help. To help themselves, one can lift my hands in the waist, thumbs to the back, finger on the abdominal muscles. Someone else can lay one’s hands during cough on his stomach and exert slight pressure. This makes it easier to cough very much!
* To avoid being overwhelmed at work and at play unwittingly by other persons, is to deal openly with the disease makes sense.
* In case of difficulties with the facial muscles, one should deal with the missing smile and facial expression impassive calm offensively. Happy images before the mind’s eye can help to maintain a positive mood.
* Very important: learning to ask for help and accept help.
* Some women notice a worsening of myasthenia during menstruation. In these cases, the pill can lead to a stabilization.
* With double vision helps the easiest and quickest way to cover one eye. With the hand that is indeed feasible, but cumbersome. An eye-patch works fine, but it looks very daring. From the USA I got the tip that can make a contact with a black spot over the pupil – works just as well as the eye patch and is much more discreet. At these tools: The cover must be regular (e.g. daily) to change sides, or an eye accustomed to doing nothing and visual performance decreases there. Connect the double images on constantly and consistently, one can be a prism by an ophthalmologist can prescribe glasses.
* Hanging eyelids can be improved by the wearing of contact lenses – a benefit for visual disorders. It is not enough, you can of course also the lids with tape taping (stick) – but then you should make sure that the eyes do not dry out too much. Artificial tears (eye drops) can help.
* When worsen ocular problems and weakness of facial expressions by bright light, a pair of sunglasses can help. At the same dark glasses is of course very well suited to conceal “doppelbildernde” eyes to the outside.
* For all those double images which make it difficult to read: There are many books on CD and audio books. In blind “to borrow to buy in any well-stocked bookstore.

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