Myasthenia Problems During Pregnancy and Birth
An improvement of the Myasthenia Gravis is just as possible during the pregnancy as a degradation. Mestinon or Kalymin cannot be taken without hesitation, them represent for the unborn a risk. Cortisone is regarded as relatively safe medicine during the pregnancy and is probably the means of first choice, if a Immunosuppression is necessary during the pregnancy. Immunglobuline, immune adsorption and Plasmapheresis are likewise without special risk for the pregnancy. The risk of premature baby birth should be increased with Myasthenia mothers.
The myasthenia pregnant woman should use to gather strength for the birth and not least for a very stressful time after birth. A stable Myasthenia is during the pregnancy meaningfully and importantly also for the child.
Because the muscles of the uterus are not affected by the MG Myasthenia Gravis, a normal birth is possible in principle. Only in the second stage of other muscles is required to cooperate, they are too weak, the use of ventouse or forceps be useful. With the exhaustion of a Caesar child birth may be necessary, but this is rather the exception. That are absolutely necessary precautions anaesthesia or local anaesthesia should definitely be discussed long before the birth with the doctors.
Since during the birth, the digestive processes are interrupted, and the active ingredients from tablets at that time only partly absorbed by the body. Mestinon should be injected intravenously if needed.
From 15 to 30 percent of the infant born children of myasthenic mg myasthenia mothers has a so-called neonatale myasthenia gravis (neonatal MG), which heals completely however within fewer weeks of after the birth. The symptoms arise within a few days after the birth and show up particularly in weakness when drinking and crying. Which children are concerned, cannot be predicted unfortunately and is not from the condition and the anti-body titer of the mother to be derived. Each newborn child of a mg mother should be supervised therefore some days after the birth medically. Also the freshly baked mother should observe herself carefully, because the hormone conversion after the birth can cause a degradation of the Myasthenia with approximately 30% of the women. For these reasons it is very advisable to go for relieving into a hospital with attached newborn child monitoring station and myasthenie experienced neurology.
It is to be considered, medicines into the mother’s milk ignores. With Mestinon one goes out in the meantime with it, mixing to 300 mg with a satisfying mother is harmless. But not only medicines, but also the antibodies of the mother are to be found in the milk. Whether satisfying is justifiable is very controversially discussed, from there and should be decided in individual cases in each case.
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Categories: Myasthenia Gravis
Tags: myasthenic, pregnancy
Myasthenic Woman Should Be Aware Before Pregnant
The Myasthenia no obstacle for a pregnancy. The MG (Myasthenia Gravis) one does not further-leave, and the muscles of the uterus are not affected by the myasthenia. Nevertheless some things are to be considered approximately around the pregnancy. Pregnancies with Myasthenia Gravis woman must be regarded in principle as risk pregnancies, a good co-operation between the woman, the treating neurologist and the gynecologist are very important!
Which should be considered before the pregnancy, depends naturally completely considerably on how heavy the Myasthenia is and is taken which medicines. Who comes only with Mestinon marvelously by right or without medicines, needs itself before not too many thoughts to make.
Differently it looks, if immunosuppressive are necessary or meaningful. In principle it is not naturally better, in these times children too gotten, because these medicines can cause – at least theoretically – damage with the child. Before now the immunosuppressive is set off for a pregnancy, is it possibly meaningfully to clarify (medically to be able to treat in the self attempt), how it with the fertility with woman and man looks, in order possible problems before. If the woman and man physician give then green light, the immunosuppressive can be set off or replaced by cortisone.
But unfortunately pregnancies do not leave themselves always so perfectly plan. If it should come during the treatment with immunosuppressive to an unplanned pregnancy, immediately the physician must be informed! Whether now the pregnancy be broken off it should or whether the immunosuppressive is set off, whether they are replaced by cortisone, whether one leaves everything with the past dosage or uses Immune globuline and or Plasma sphere becomes, depend surely on many factors. Nevertheless newer studies showed, which does not have Imurek with humans as can be prove damaging effect on the unborn. With women, who become more pregnant after a organ transplantation, even a continuation of the Imurek therapy is to be recommended (however surviving depends completely considerably on the Immunosuppression) with these women.
It is in any case advisable to look in such cases in the Internet for new research results! Antje arranged very good information about pregnancy and immunosuppressive drugs, and tips for further information search.
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Categories: Myasthenia Gravis
Tags: myasthenic, pregnancy
Useful Sports for Myasthenia Gravis Patients
In principle it is valid for Myasthenic as for healthy people that a regular sporty manipulation of the health is favorable. It is important to select the kind of sport in such a way that no overexertion takes place.
Please read about useful myasthenia sports for myasthenia patients below, maybe it can help to enjoy your daily life.
- Permitted everything that makes fun, is fundamental and which the mg does not exceed borders.
- Regular, probably-proportioned sport helps to strengthen the musculature and can also to the improvement of the Myasthenia Gravis contribute.
- Myasthenia tired muscles to train to want specially strong, brings only grind and overexertion.
- The structure of training should be arranged more careful, than with healthy sportsmen. To unusual effort can react to mg muscles afterwards with several-day-long weakness. Increase thus as regularly as possible “emoluments” and the requirements slowly and with consideration.
- Reduce with reaching the Myasthenia borders the load, breaks insert or exercises which can be exerted suspend.
- Caution with kinds of sport, with which one can ignore the own borders in the eagerness of combat.
- With kinds of extreme haven and such with high factor of risk one must ask oneself the more exactly whether the planned projects make the present physical condition really possible. Who states with Free climbing lonely in the wall the fact that the Myasthenia Gravis does not want no more has perhaps a genuine problem!
- Who would like to have suggestions for recommendable exercises, that can refer a video over the Myasthenia Gravis Society in United States, Japan, Germany, Italy, France, Australia, United Kingdom and other countries. – “Myasthenia grave patient in motion”. The video was produced in cooperation with a sports therapist who for years which cares for Myasthenia sports.
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Categories: Myasthenia Gravis
Tags: Myasthenia Gravis, sports
Everyday Living with Myasthenia Gravis Tips Part 2
Even if the Myasthenia Gravis now well researched and is well treated, she has influenced the lives of those affected significantly. Who, however, manage to come to terms with the disease, can often lead a largely normal life. The limits imposed by one’s Myasthenia Gravis should you get to know and respect. This can be achieved by learning to estimate accurately and watches his myasthenia, for what activities their own reserves as long as sufficient. Exertion should be avoided. A demand dose of Myasthenia medicines does a rest of the quality of life.
* In case of difficulties with the closing of the eyes can be a helpful towed headband over his eyes when sleeping.
* Alcohol makes some myasthenic a red face (especially good “colors” red wine) – this is not dangerous, but annoying (or funny) Be. Occasional consumption of alcohol is certainly justifiable. However, alcohol can lead to a relaxation of the muscles (especially the muscles of the esophagus should significantly relax), may thus occur in small amounts of a deterioration of MG.
* Nicotine and coffee can be further triggered a short-term worsening of symptoms. And some Myasthenia patients also have a short-term deterioration by strong smelling substances – perfumes, cleaning agents and solvents.
* If the tongue is tired and weakens the cheek muscles, then we must pay special attention to oral hygiene and wash carefully after eating all the leftovers. An oral irrigator can be helpful.
* Regularly go to the dentist. The more often controlled the teeth, the less extensive are the necessary “repairs” and that in turn means that one must keep the mouth open so long. If large “construction sites” must be processed, you should discuss with the dentist if you can distribute work to multiple deadlines. It makes sense if the dentist on the gun issues is informed – perhaps he can also insert pauses in between to allow the muscles to recover. Do not forget in time before the treatment, the Mestinon or deliberately put the dates in the “good” hours!
* When manufacture (and certainly elsewhere) there is a brilliant opener for twist-off lid – brilliantly simple to use, it facilitates the lives quite considerably. The URL of the agent is known to me to find links to the.
* The rehabilitation retailers there is a large selection of tools that can simplify and bad times, the MG-life. These include for example comb with extra long handle, so that when combing the arms must not think so highly devices to open jars and bottles easier in weak hands, handles for the bathroom, the phase-out of the bathtub safer and much more.
* Since the MG very happy to respond to emotional stress, you should learn to deal positively with stress. This is of course easier said than done, but if you can order really busy, then you certainly can find ways to not fret over so quickly, and are less stressed out. Sometimes you can not change the facts of life, but can I change the way you see it!
* One should not cling to the mind what you can not do, but to draw attention to what is feasible.
* Over and over again: finding out what it does well and what improves the myasthenia symptoms. And then integrate into the daily routine.
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Categories: Myasthenia Gravis
Tags: Myasthenia Gravis, treatment
Daily Life with Myasthenia Gravis Tips Part 1
The necessary changes by the Myasthenia Gravis of everyday life are very individual and depend not only on the severity of the myasthenia disease, but also depends on how much the Myasthenia symptoms of impeding the course of normal everyday life. Therefore, everyone should pick out from these instructions only what makes our own situation. If you have more tips daily life with myasthenia gravis, please send to me and I will publish immediately.
* If the forces sufficient only for a limited time, you should schedule breaks throughout the day.
* The more limited the powers, the more thoroughly must learn to classify them.
* An afternoon nap, a nap can bring new energy reserves for the afternoon and evening.
* Work for which not enough our own forces, if possible give to others. This is not possible, you should consider whether the work can be other ways easier to handle. Here, imagination is required! Often, small changes lead to handle even a big relief.
* Whenever it is reasonable and practicable, you should use technical and / or electrical aids.
* For kitchen appliances and respect for other media buying on a simple and myasthenia-friendly operation and low weight.
* Who has difficulties with the arms, should not in cabinets or the like often necessary articles over addendum keep. This is completely particularly valid for heavy articles! A Tretleiter can help to increase the range.
* Anyone who has difficulty in standing, should be used whenever necessary, a standing aid. Many tasks can be done even when sitting.
* On smooth floors, can prevent falls ABS socks or slippers.
* A car with power steering and automatic transmission can save valuable power.
* To be prepared in case of emergency, it is useful to always carry an emergency passport with him. For just in case of accidents it is necessary that doctors be informed about the myasthenia.
* If the breathing difficulty at night and can, especially at night time interruptions in breathing apnea, a Bi-PAP auxiliary breathing apparatus to bring relief to make restful sleep, and thus ensuring greater energy reserves during the day.
* If lack the strength to cough again, you can support the abdominal muscles, either himself, if the power is there, or ask someone for help. To help themselves, one can lift my hands in the waist, thumbs to the back, finger on the abdominal muscles. Someone else can lay one’s hands during cough on his stomach and exert slight pressure. This makes it easier to cough very much!
* To avoid being overwhelmed at work and at play unwittingly by other persons, is to deal openly with the disease makes sense.
* In case of difficulties with the facial muscles, one should deal with the missing smile and facial expression impassive calm offensively. Happy images before the mind’s eye can help to maintain a positive mood.
* Very important: learning to ask for help and accept help.
* Some women notice a worsening of myasthenia during menstruation. In these cases, the pill can lead to a stabilization.
* With double vision helps the easiest and quickest way to cover one eye. With the hand that is indeed feasible, but cumbersome. An eye-patch works fine, but it looks very daring. From the USA I got the tip that can make a contact with a black spot over the pupil – works just as well as the eye patch and is much more discreet. At these tools: The cover must be regular (e.g. daily) to change sides, or an eye accustomed to doing nothing and visual performance decreases there. Connect the double images on constantly and consistently, one can be a prism by an ophthalmologist can prescribe glasses.
* Hanging eyelids can be improved by the wearing of contact lenses – a benefit for visual disorders. It is not enough, you can of course also the lids with tape taping (stick) – but then you should make sure that the eyes do not dry out too much. Artificial tears (eye drops) can help.
* When worsen ocular problems and weakness of facial expressions by bright light, a pair of sunglasses can help. At the same dark glasses is of course very well suited to conceal “doppelbildernde” eyes to the outside.
* For all those double images which make it difficult to read: There are many books on CD and audio books. In blind “to borrow to buy in any well-stocked bookstore.
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Categories: Myasthenia Gravis
Tags: Myasthenia Gravis, myasthenic, tips
