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Holiday Tips for Myasthenic

In principle, it is not a problem, despite myasthenia-gravis go on vacation. Basically you should be aware of the special features of myasthenia own a little to early detection of a possible risk to. What is daring even for healthy people, can be used for myasthenic an incalculable risk.

*  With air passage luggage items can be lost! Therefore always at least, in the case of doubt all medicines rather carry a multi-daily supply forward of medicines in the hand baggage in´s hand baggage!
*  Carry sufficiently medicines forward. Nothing is more annoying to have to look for as itself in the vacation only a physician and a pharmacy. Besides one must count abroad on the fact that the used medicines are to be gotten heavy or not at all. Enough Mestinon for easy degradations take into account!
* A foreign health insurance should be always locked with journeys abroad. And one inquires, before one signs the contract whether the insurance takes over also the costs of the treatment from diseases already existing – that is not natural unfortunately!
* In many countries the medical supply is clearly worse, than we are accustomed it in Central Europe. One should plan journeys to such countries doubly thoroughly and carefully and completely absolutely carry an extra plentiful supply forward of medicines.
*  There is a very good web page, on which one can inform about health risks and inoculation for the desired destination – the URL is deposited with on
*  Travel conditioned health risks must be taken into account particularly carefully. Some travel sicknesses can be avoided by prudent behavior. This is valid already for healthy one, Myasthenics must this doubly and three-way consider.
*  Journeys into countries or regions with special infection risk is to be advised against.
*   The more with difficulty the Myasthenia, the more prudently should be travel planning.
*  Discuss in the case of doubt the travel plans with the treating neurologist and before beginning of the journey inquiries draw in whether at the resort mg-experienced physicians are to be found.
*  Myasthenia medicines should not be kept over 25º C, be transported from there with author iron the medicines in the case of doubt in a cold box.

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Against Mental Low from Myasthenia

Most Myasthenic knows: If the Myasthenia MG is bad, one is also emotional and can get bad-mood. A vicious circle, since the emotional load can worsen for its part again the Myasthenia disease. Thus, it is doubly important in bad times, do something that’s good, a little too pampered and comforted.

As addition of the hints for technical handling the Myasthenia Gravis (MG) this is round a loose collection of hints of different Myasthenic around the topic “Help for the Soul”. Inevitably these hints are still more personal and more individual than any other. Ideas are certainly among them, the one wonderful help, the others are but a great horror. How to search out something to suit everyone – and let yourself be inspired to own ideas!

Most importantly it is natural to treat and or treat let the Myasthenia meaningfully. But unfortunately, the drugs sometimes take a while to be effective for those times here, the ideas for the “soul rescue”. I hope all myasthenics every where can struggle from low mental so they can enjoy daily live with myasthenia.

Everyday Living with Myasthenia Gravis Tips Part 2

Even if the Myasthenia Gravis now well researched and is well treated, she has influenced the lives of those affected significantly. Who, however, manage to come to terms with the disease, can often lead a largely normal life. The limits imposed by one’s Myasthenia Gravis should you get to know and respect. This can be achieved by learning to estimate accurately and watches his myasthenia, for what activities their own reserves as long as sufficient. Exertion should be avoided. A demand dose of Myasthenia medicines does a rest of the quality of life.

* In case of difficulties with the closing of the eyes can be a helpful towed headband over his eyes when sleeping.
* Alcohol makes some myasthenic a red face (especially good “colors” red wine) – this is not dangerous, but annoying (or funny) Be. Occasional consumption of alcohol is certainly justifiable. However, alcohol can lead to a relaxation of the muscles (especially the muscles of the esophagus should significantly relax), may thus occur in small amounts of a deterioration of MG.
* Nicotine and coffee can be further triggered a short-term worsening of symptoms. And some Myasthenia patients also have a short-term deterioration by strong smelling substances – perfumes, cleaning agents and solvents.
* If the tongue is tired and weakens the cheek muscles, then we must pay special attention to oral hygiene and wash carefully after eating all the leftovers. An oral irrigator can be helpful.
* Regularly go to the dentist. The more often controlled the teeth, the less extensive are the necessary “repairs” and that in turn means that one must keep the mouth open so long. If large “construction sites” must be processed, you should discuss with the dentist if you can distribute work to multiple deadlines. It makes sense if the dentist on the gun issues is informed – perhaps he can also insert pauses in between to allow the muscles to recover. Do not forget in time before the treatment, the Mestinon or deliberately put the dates in the “good” hours!
* When manufacture (and certainly elsewhere) there is a brilliant opener for twist-off lid – brilliantly simple to use, it facilitates the lives quite considerably. The URL of the agent is known to me to find links to the.
* The rehabilitation retailers there is a large selection of tools that can simplify and bad times, the MG-life. These include for example comb with extra long handle, so that when combing the arms must not think so highly devices to open jars and bottles easier in weak hands, handles for the bathroom, the phase-out of the bathtub safer and much more.
* Since the MG very happy to respond to emotional stress, you should learn to deal positively with stress. This is of course easier said than done, but if you can order really busy, then you certainly can find ways to not fret over so quickly, and are less stressed out. Sometimes you can not change the facts of life, but can I change the way you see it!
* One should not cling to the mind what you can not do, but to draw attention to what is feasible.
* Over and over again: finding out what it does well and what improves the myasthenia symptoms. And then integrate into the daily routine.

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Daily Life with Myasthenia Gravis Tips Part 1

The necessary changes by the Myasthenia Gravis of everyday life are very individual and depend not only on the severity of the myasthenia disease, but also depends on how much the Myasthenia symptoms of impeding the course of normal everyday life. Therefore, everyone should pick out from these instructions only what makes our own situation. If you have more tips daily life with myasthenia gravis, please send to me and I will publish immediately.

* If the forces sufficient only for a limited time, you should schedule breaks throughout the day.
* The more limited the powers, the more thoroughly must learn to classify them.
* An afternoon nap, a nap can bring new energy reserves for the afternoon and evening.
* Work for which not enough our own forces, if possible give to others. This is not possible, you should consider whether the work can be other ways easier to handle. Here, imagination is required! Often, small changes lead to handle even a big relief.
* Whenever it is reasonable and practicable, you should use technical and / or electrical aids.
* For kitchen appliances and respect for other media buying on a simple and myasthenia-friendly operation and low weight.
* Who has difficulties with the arms, should not in cabinets or the like often necessary articles over addendum keep. This is completely particularly valid for heavy articles! A Tretleiter can help to increase the range.
* Anyone who has difficulty in standing, should be used whenever necessary, a standing aid. Many tasks can be done even when sitting.
* On smooth floors, can prevent falls ABS socks or slippers.
* A car with power steering and automatic transmission can save valuable power.
* To be prepared in case of emergency, it is useful to always carry an emergency passport with him. For just in case of accidents it is necessary that doctors be informed about the myasthenia.
* If the breathing difficulty at night and can, especially at night time interruptions in breathing apnea, a Bi-PAP auxiliary breathing apparatus to bring relief to make restful sleep, and thus ensuring greater energy reserves during the day.
* If lack the strength to cough again, you can support the abdominal muscles, either himself, if the power is there, or ask someone for help. To help themselves, one can lift my hands in the waist, thumbs to the back, finger on the abdominal muscles. Someone else can lay one’s hands during cough on his stomach and exert slight pressure. This makes it easier to cough very much!
* To avoid being overwhelmed at work and at play unwittingly by other persons, is to deal openly with the disease makes sense.
* In case of difficulties with the facial muscles, one should deal with the missing smile and facial expression impassive calm offensively. Happy images before the mind’s eye can help to maintain a positive mood.
* Very important: learning to ask for help and accept help.
* Some women notice a worsening of myasthenia during menstruation. In these cases, the pill can lead to a stabilization.
* With double vision helps the easiest and quickest way to cover one eye. With the hand that is indeed feasible, but cumbersome. An eye-patch works fine, but it looks very daring. From the USA I got the tip that can make a contact with a black spot over the pupil – works just as well as the eye patch and is much more discreet. At these tools: The cover must be regular (e.g. daily) to change sides, or an eye accustomed to doing nothing and visual performance decreases there. Connect the double images on constantly and consistently, one can be a prism by an ophthalmologist can prescribe glasses.
* Hanging eyelids can be improved by the wearing of contact lenses – a benefit for visual disorders. It is not enough, you can of course also the lids with tape taping (stick) – but then you should make sure that the eyes do not dry out too much. Artificial tears (eye drops) can help.
* When worsen ocular problems and weakness of facial expressions by bright light, a pair of sunglasses can help. At the same dark glasses is of course very well suited to conceal “doppelbildernde” eyes to the outside.
* For all those double images which make it difficult to read: There are many books on CD and audio books. In blind “to borrow to buy in any well-stocked bookstore.

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Myasthenia Gravis Treatment Guidelines Part 1

The Myasthenia Gravis is now fairly well researched from a medical perspective. Only a few decades myasthenic are regularly died of their disease because lack of information about Myasthenia disease, myasthenia gravis today no shortening effect of longer life expectancy. There are a whole range of treatment options that attach to different points. Usually several ways to combine, in part, the methods are useful only in combination. Which medications should be taken in what dosage and what options are displayed when, can be set only individually. Experience of the physician is therefore essential for successful treatment of major importance.

The following information is collected from a layman’s medical and shaped by personal experience, they do not claim to scientific precision. Above all, they can not replace a visit to the myasthenia doctor!

Improvement of the attraction transmission

As the first and most important possibility of treatment the attraction transmission at the synapses is improved by medicines. Functions, as the dismantling of the chemical messenger acetyl choline is braked.  Several means stand to the selection, which work within short time, whose effect in addition, only short time continue.

Treatment of the immune system

With the treatment of the immune system can go a step further: the treatment of the immune system to slow down the formation of antibodies and stopping misguided at best, almost completely. For this are various medications and some treatments are available.

* Cortisone
Cortisone is a hormone that occurs naturally in the body is. For the treatment of many inflammatory diseases and to curb exuberant immune cortisone is produced artificially. In the treatment of myasthenia cortisone is used very successfully, strangely enough, it can happen in the first 2-3 weeks after starting treatment with temporary worsening of myasthenia.

* Immunosuppressants
Because in the long term steroid treatment may have relatively many side effects, other drugs are often used to slow the formation of antibodies. The effect of these medical treatment begins only very slowly, usually with an improvement after 3 to 4 months to be expected, but it may take up to two years until the success of treatment is evident. The treatment is therefore more long-term.

* Plasmapheresis and immuno adsorption
In myasthenia crisis and in severe cases, the antibodies can be mechanically removed from the blood. Plasmapheresis, part of the blood plasma is removed, as a substitute, there is human albumin or donor plasma. In immuno adsorption, the plasma is similar to a blood cleaning “. Both methods are relatively expensive and complex, so that improvement can be achieved fairly quickly, however. To prevent that, the body produces then – almost to compensate – particularly large number of antibodies that are usually used simultaneously cortisone and / or immunosuppressants. The effect of this treatment options may continue for several months to years.

* Immuno globulins
Conjugate is administered as an infusion. Like immuno adsorption plasmapheresis and IVIG are used in severe cases and in myasthenic crisis. The effect is roughly comparable, as in the two previously mentioned methods.

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