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Daily Life with Myasthenia Gravis Tips Part 1

The necessary changes by the Myasthenia Gravis of everyday life are very individual and depend not only on the severity of the myasthenia disease, but also depends on how much the Myasthenia symptoms of impeding the course of normal everyday life. Therefore, everyone should pick out from these instructions only what makes our own situation. If you have more tips daily life with myasthenia gravis, please send to me and I will publish immediately.

* If the forces sufficient only for a limited time, you should schedule breaks throughout the day.
* The more limited the powers, the more thoroughly must learn to classify them.
* An afternoon nap, a nap can bring new energy reserves for the afternoon and evening.
* Work for which not enough our own forces, if possible give to others. This is not possible, you should consider whether the work can be other ways easier to handle. Here, imagination is required! Often, small changes lead to handle even a big relief.
* Whenever it is reasonable and practicable, you should use technical and / or electrical aids.
* For kitchen appliances and respect for other media buying on a simple and myasthenia-friendly operation and low weight.
* Who has difficulties with the arms, should not in cabinets or the like often necessary articles over addendum keep. This is completely particularly valid for heavy articles! A Tretleiter can help to increase the range.
* Anyone who has difficulty in standing, should be used whenever necessary, a standing aid. Many tasks can be done even when sitting.
* On smooth floors, can prevent falls ABS socks or slippers.
* A car with power steering and automatic transmission can save valuable power.
* To be prepared in case of emergency, it is useful to always carry an emergency passport with him. For just in case of accidents it is necessary that doctors be informed about the myasthenia.
* If the breathing difficulty at night and can, especially at night time interruptions in breathing apnea, a Bi-PAP auxiliary breathing apparatus to bring relief to make restful sleep, and thus ensuring greater energy reserves during the day.
* If lack the strength to cough again, you can support the abdominal muscles, either himself, if the power is there, or ask someone for help. To help themselves, one can lift my hands in the waist, thumbs to the back, finger on the abdominal muscles. Someone else can lay one’s hands during cough on his stomach and exert slight pressure. This makes it easier to cough very much!
* To avoid being overwhelmed at work and at play unwittingly by other persons, is to deal openly with the disease makes sense.
* In case of difficulties with the facial muscles, one should deal with the missing smile and facial expression impassive calm offensively. Happy images before the mind’s eye can help to maintain a positive mood.
* Very important: learning to ask for help and accept help.
* Some women notice a worsening of myasthenia during menstruation. In these cases, the pill can lead to a stabilization.
* With double vision helps the easiest and quickest way to cover one eye. With the hand that is indeed feasible, but cumbersome. An eye-patch works fine, but it looks very daring. From the USA I got the tip that can make a contact with a black spot over the pupil – works just as well as the eye patch and is much more discreet. At these tools: The cover must be regular (e.g. daily) to change sides, or an eye accustomed to doing nothing and visual performance decreases there. Connect the double images on constantly and consistently, one can be a prism by an ophthalmologist can prescribe glasses.
* Hanging eyelids can be improved by the wearing of contact lenses – a benefit for visual disorders. It is not enough, you can of course also the lids with tape taping (stick) – but then you should make sure that the eyes do not dry out too much. Artificial tears (eye drops) can help.
* When worsen ocular problems and weakness of facial expressions by bright light, a pair of sunglasses can help. At the same dark glasses is of course very well suited to conceal “doppelbildernde” eyes to the outside.
* For all those double images which make it difficult to read: There are many books on CD and audio books. In blind “to borrow to buy in any well-stocked bookstore.

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Signs Myasthenia Gravis Bulbar Symptoms

There are some signs of myasthenia gravis bulbar symptoms, please check it out :
- Talk : don’t escape from air by the nose, the usual division of  breath when speaking no longer fits. Babbling. Speech is low, indistinct and blurred, less expressive intonation, clumsy tongue.
- Listen : worse hearing, increased sensitivity to noise
- Tongue : frequently, on the tongue biting, food can be transported in the mouth can not adequately as the pharynx, to remove food particles between teeth and cheek wall difficult to restrictions on speech.
- Whistles : notes are not cleanly taken, pursing of the lips is not possible, air escapes through the nose.
- Chewing : firm or softer foods may not be completely chewing, biting on the tongue or cheek.
- Swallow : food remains stuck in the esophagus (which can be painful and uncomfortable), choking, gagging, belching the food share with me, drinks / foods fall into the nose when swallowing.
- Lips : be wiped away can not be reliably concluded (e.g. to rinsing after the tooth flash), spoons cannot be sharpened and fork no more cannot become “wiped off”, restrictions when speaking, cheeks can no more not be blown up, saliva runs from the mouth for whistling any longer, less correctly mobile when kissing.
- Breath : breathing is unusually strenuous or tedious, shortness of breath, breathing heavier than when lying in an upright position, cough without force.
- Mime : sliding out smile (corners of the mouth can not reliably increase), distorted face in laughter, gives an entirely immobile facial expression , MG provides independent from the real mood of tired, arrogant or sad.
- Singing : difficulties, the tone to take and hold on myasthenia-gravis patients, Expressive and modulation capability to let the voice, the sound spectrum is restricted.

After we got explanation about signs of myasthenia gravis bulbar symptom, I will write about Myasthenia Gravis generalized symptoms next. I hope you can check at myasthenia hospital centre or myasthenia gravis medicals in United States (New York, California, Texas, Illinois, Arizona or other states), Canada, Japan, France, Italy, Netherlands, Russia, Poland, United Kingdom, Australia or other medical doctors at your country.

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